Wednesday, February 26, 2014
Ugh, Tuesday.
Tuesdays have become my Monday. Six and a half hours of therapy/support groups. What was I thinking? Oh yeah, I was thinking that if I grouped everything together, I would only have one trip per week up to Richmond. Makes sense. *punches self in head*
The endocrinologists office called me unexpectedly yesterday. Alex's bloodwork and bone scan had come back. All of his levels were good except for his Vitamin D. The bone scan was deemed passable. Ok, no problem. So we stopped off at Walgreens and began Vit. D 1000 mg twice a day. As a precaution I also bought some calcium chews. In studies, it has been shown that FtM testosterone recipients have difficulties with bone loss. This is not a deal breaker for the testosterone treatment. As long as he stays on a vitamin regime, his levels will come up. Our appointment stands for March 17.
Wednesday 2:22 pm
So yesterday's therapy etc. went ok. Alex had me come in at his One on One to re-cap last weeks visit with Endo. The therapist was supportive albeit a bit surprised when we informed her that we would possibly be starting the injections in a couple of weeks. The problem lies in the fact that everyone outside of your situation will always think it's too fast, no matter how slow you go. After all of the reading I have done, it is clear that the individual should have that choice. How fast or slow they go is between them and their medical professional. Not everyone agrees but they are not living this life.
Group therapy is always difficult for Alex and after about 30 minutes he writes me a note, asking if we can leave early. Absolutely not. We have gone over this numerous times. You don't have to like it, you just have to do it. The resulting NO pisses him off and he wastes the next 20 minutes fuming. Ah well. If someone isn't pissed off, I'm not doing my job.
By the end of the night he is showing signs of a beginning cold. I drug him and put him to bed. After a couple hours of school, they call me. He's at the nurses, all sickly and shit. Fantastic.
So here we sit at home. Not much I can do for a cold except treat symptoms and wait it out. With the amount of vitamins this kid takes, I was very surprised he could even get sick. Ha!
Sunday, February 23, 2014
Priorities and Goal Setting or Mom's OCD kills Everyone
It's not a secret, I'm an avid control-freak. I tend to micro-manage events as small as how the dishwasher is loaded, how the dog is fed and which way the tp comes off the roll. And even though my brain defaults to this particular crazy everytime, I consider myself to be 'easy going' and 'flexible'. Yeah, ok. When it comes to Alex, this mindset is throttled on a daily basis. An example would be school. I know that you can not get anywhere in life without some kind of education. There are peers of mine with bachelors degrees serving the public at drive thrus all over town. The more educated you are, the better chance you have of getting a good job. That's a fact in my world. I have always stressed that to my kid, he sees me working to better myself even now. He's failing. And I believe it's for multiple reasons. The last 2 years has been difficult at best. His mind could not focus on anything but the changes he was going through. I honestly believe that. And where good grades in school had been a necessity, they soon lost some of that urgency. My push for A's and B's digressed to "a C is great honey!" Honestly, the other challenges just plain out-weighed the need for Honor Roll. So, here we are, 2 years later and semi-stable. The grades have not improved. Should I push harder and expect more? He has no interest in any of his classes, no drive to work harder to keep up, no ambition to excel. I've tried goal setting and time management, ordering and threats, prizes and praise. Nothing makes a difference. School apathy. BUT, he dreams of a fantastical life where he will have a wondrous apartment, full of animals and video games with a shiny new mini-Cooper to drive around in. Possibly in France. He will fail Algebra this year. Luckily he can re-take it next year without any bad effects. Hopefully he will pass the rest of his classes because summer school runs $400 a class and will negate anything fun in July. I have sad face.
The latest obsession is the 'driving' and the 'i want a car'. Joe has taught Alex the wonder that is CraigsList and now I have 2 men staring at computers hours on end. Alex to Dad ~ " This one is perfect! And it's beautiful and cool and swag. Don't you just LOVE it???! Can we buy it yesterday? I know it's 40 billionty dollars but that's ok because you have a debit card. Cmon let's go!" Dad to Alex ~ " $%#*&$%!@#$. and No. I will only accept a small truck or sedan that is old and ugly as all hell that won't jack my insurance up." Cue the arguing and rolling of eyes, followed by the anger and glaring. Too much fun. I don't get involved.
This is my pick. Ha!
TRANSPARENT ~ Transparent stars Jeffrey Tambor as the titular character, Maura, a trans woman coming out late in life and trying to share her authentic self with her dysfunctional family, including her selfish children and ex-wife.
Alex's replay of the day.
Cat Power: Sea of Love
Thursday, February 20, 2014
Thumbs UP!
Today was the big day. Endocrinologist appointment. Traffic was awful and I was glad we left early. The office was full of flyers for children's diabetes, I hoped silently that this was the place we wanted to be. I had to trust the GP's recommendation. I filled out the obligatory paperwork and Alex had his vitals done. We were both very nervous. * side note: My husband came along. He is making the effort to understand the process. This is very difficult for him. An effort is all we can ask for right now. ~ We spoke with Dr. X and nervously outlined what we were looking for, giving him a brief history and a future outlook plan. He was very pleasant and smiling the whole time. After some standard questions about Alex's cycle and general health, he informed us that Dr. Y was the one who we needed to talk with. Dr. Y was actually the doctor I had found on the internet and requested from the GP. I guess she had no openings which is why we were scheduled with one of her partners. Dr. Y came in. She's perfect. She knows exactly where we want to be and how to get us there. She did a physical exam of Alex and we had some blood drawn. We also had to go to radiology and get a bone age x-ray. On March 17 we go back to review the blood work and bone scan. If all is good then we will proceed with HRT. These will consist of subcutaneous shots of T bi-weekly at first. This is much sooner than I had expected. I was sure we would be looking at the end of the summer...or later. Alex is happy and, although the thought of shots is unappealing, he is resolved to do whatever it takes to get started with his transition.
Tonight we have Rosmy and I have a support group meeting as well. I'll be dragging my husband along as I think it's time he starts socializing with others like us. It may help.....I hope he can keep an open mind. We'll see.
ROSMY ~ Richmond
Tonight we have Rosmy and I have a support group meeting as well. I'll be dragging my husband along as I think it's time he starts socializing with others like us. It may help.....I hope he can keep an open mind. We'll see.
ROSMY ~ Richmond
Saturday, February 15, 2014
Happy ( late ) Valentines Day!
Happy belated Valentines Day! It's been very quiet here since the snowpocolypse. School was cancelled and Alex has been bumping around the house, moaning about not getting texted by anyone. He is sensitive and over-thinks everything. Just looking at Facebook on Valentines Day made him feel angry and shameful ( his words) and he ended up deleting his page. He looks at what other people post and imagines that they are happy and having a great time, and doing it to hurt him? mock him? make him jealous? I dunno. I encouraged him to delete it anyway. If it upsets him that much then it needs to be gone. Social media can be a bitch for kids, especially when they aren't good at emotional regulation.
There isn't much new on the Trans front. The appointment with the endocrine doc is coming up this week and I think we are both hopeful that it at least gets the ball rolling in the right direction. I explained that the doctor wouldn't simply give Alex testosterone on the first visit. There is testing and probably multiple visits in our future.
In related news that effects us all, Avery will be moving into a new group home on the 28th. It's been a long time coming because the new home was just purchased and is going through licensure. I hate the chaos that moving introduces into his life but it a good thing this time. It will take him a month or so to settle in and this will be a much healthier environment for him in the end.
Wednesday, February 12, 2014
Tuesdays suck.
Monday, February 10, 2014
More of the same.
I'm a bit of a recluse at times. I actually prefer my own company, can keep myself amused indefinitely and enjoy solitude. This doesn't happen often but I never complain when the opportunity arises. If you are a wife and/or mother, you know. Lately my quiet moments have been filled with 'the sad' and this is never enjoyable. I wallow and flop around in my own self-pity. It's not cute and rather pathetic. "Ain't Nobody Got Time For That." as Sweet Brown would say. But this too comes with my territory. Anyway, if I stop writing for some time, this is why. My brain can't manage full sentences during these times and it doesn't give a shit either. Ah well, it's starting to pass so all is well again.
I managed to finish The Transgender Child on Saturday. I have to say that the last 2 chapters were probably the most helpful for me. They cover medical and legal issues, giving lots of sites and addresses for help, if needed. I will hang onto this one as it may prove to be a valuable resource in the future. Next, I did pick up The Transgender Guidebook: Keys to a successful transition by Anne Boedecker, PhD. I've only read a few pages but it has a very different tone to it, you can tell its geared toward adults.
My senior project was rejected at first by my mentor. Too broad of a subject. Today I narrowed it down. The title is Neuroanatomical Differences Between Transsexuals and Cissexuals. I wrote my abstract and submitted it to the committee for consideration. I won't know if they approve it for a week or so. If they do, then I will present findings in front of a huge room of visiting professionals and school staff and peers. I'm not nervous...yet.
Alex 2/9
Friday, February 7, 2014
It's Friday morning. Yep. I'm staying positive.
Morning. It would seem I spoke too soon. Last night Tricare denied our referral to the doctor we requested. They couldn't understand why we wanted to go soooooo far away just to see a pediatrician when there are so many close by. I found this out last night while at Rosmy and was loathe to tell Alex. I was sure he would lose his shit right there. But, it went better than I anticipated and he understands that finding a doc we can slip by Tricare who is transgender friendly will be a difficult job. Luckily, one of the facilitators had the name of another doc that is actually in the area. Yay. ( That's a stifled yay. No getting hopes too high yet. ) So I'm waiting to hear back from the GP. If this new ped. endo. is accepted by Tricare, we are back on track. Fingers crossed.
Alex's song this morning. :-)
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